Dysautonomia Research Registry


Privacy Policy

Last updated: April 2026

What We Collect

The only personal information we collect is your email address, provided voluntarily when you subscribe using the form on this site. We do not collect health information, medical history, diagnoses, or any other personal health data.

How It's Used

Your email address is used solely to send you updates and newsletters. We use Kit as our email service provider. When you subscribe, your address is transmitted to and stored by Kit under their platform terms. Kit is the data processor — their privacy policy governs how they handle subscriber data.

Cookies

This site is a static HTML site. We do not use advertising, analytics tracking, or behavioral profiling cookies. A functional cookie may be set to remember your party mode preference.

Third Parties

We do not sell health data. We do not, and will not, collect any data on you other than email addresses and consenting communication sign-ups. Kit processes email delivery on our behalf.

Your Rights

You can unsubscribe at any time using the link in any email we send. To request removal or ask a privacy question, contact us at [email protected].

Changes

This policy may be updated periodically. Continued use of the site after changes constitutes acceptance of the updated policy.


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