About

The reason this project exists is because autonomic dysfunction — POTS, ME/CFS, dysautonomia, and other labels — is usually only ever discussed at the level of those labels and their symptoms, while the underlying physiology remains underexamined at the doctor's office.

Because most clinical care stops at symptom management, doctors and patients alike come to believe these conditions are incurable, lifelong, and without options. The research says something completely different.

Since at least the late 1990s, research labs have had the tools and standards to ask deeper questions about the mechanisms causing these symptoms. But because of how the healthcare system is structured, the innovation happening in research labs doesn't make it to the bedside and doesn't become the standard of care.

The thesis of the Dysautonomia Research Registry is to point to peer-reviewed research spanning decades — all saying the same thing: the problems in these conditions are measurable, identifiable, and not a mystery. They are diseases of cerebral autoregulation, issues within the cervical spine, baroreflex dysfunction, vestibular dysfunction, maladaptive neural plasticity, and other causes that are identifiable and more upstream than the peripheral autonomic nervous system, the cardiovascular system, or the mitochondria. Each of these mechanisms is measurable. Progress can be tracked. Improvement can be witnessed. That changes everything about how these conditions should be approached.

A Note on Sources

All content on this site summarizes published, peer-reviewed research. Every article links directly to the original source material so readers can verify claims and read further. Nothing here constitutes medical advice.

Contact

For research suggestions, corrections, or general questions, visit the contact page.